ALS Super Fund
ALS SUPER FUND
Plan
Our vision is a life not limited by ALS.
Led by ALS Action Canada, the Super Fund is an ALS community-driven movement to accelerate treatments, increase advocacy and collaboration, and mobilize investment in ALS research.
The Problem
Progress isn't happening fast enough
ALS is a devastating neurological disease that affects thousands of Canadians, gradually taking away a person’s ability to move, speak, and breathe. People are diagnosed with little time, limited treatment options, and uneven access to care and clinical trials.
At the same time, efforts to end ALS are fragmented—spread across organizations, geographies, and priorities. Funding, research, and advocacy are not always aligned, slowing progress when urgency is critical.
The result is a slower path to progress, when we could be moving faster, together.
The Opportunity
Building a united movement against ALS
Promising treatments are emerging, and research is advancing—but progress isn’t happening fast enough for those affected by ALS.
The ALS Super Fund is a movement builder and connector: bringing together charities, researchers, clinicians, advocates, communities, and corporate partners across Canada and the United States to align efforts in policy, research, awareness, and funding.
By raising and directing funds toward high-impact projects, the Super Fund helps accelerate progress while ensuring that decisions reflect the voices and perspectives of those most affected by ALS. This collaborative, inclusive approach connects people, organizations, and resources around a shared mission to accelerate progress against ALS.
A Movement Inspired by Lived Experience
Remembering Mark Kirton (1958-2025), Co-Founder of the ALS Super Fund
Mark Kirton was a former NHL player, ALS advocate, and Board Director at ALS Action Canada. After being diagnosed with ALS in 2018, he transformed his personal battle into a movement, helping to launch ALS Action Canada, the country's only patient-led ALS organization, and founding the ALS Super Fund.
Through his leadership, Mark brought together patients, researchers, clinicians, advocates, and the hockey community to advance progress toward a cure. He led national campaigns that united all 32 NHL teams and raised significant funding for ALS research and care. Known for his authenticity, determination, and ability to unite people around a shared purpose, Mark helped build a movement that continues to guide the ALS Super Fund today—connecting people, organizations, and resources to advance treatments, strengthen advocacy, and move closer to a future where life is not limited by ALS.
Our funding priorities
Our Grantees
Organizations advancing ALS research, care, and access, supported through the ALS Super Fund.
People
Meet the Leaders
Led by ALS Action Canada, the ALS Super Fund is guided by a leadership team of global ALS experts and people with lived experience, including neurologists, researchers, clinicians, charity leaders, and patient advocates.
ALS Action Canada Board of Directors
ALS Super Fund Leader
ALS Action Canada is a patient- and caregiver-led organization driven by the voices of people directly impacted by ALS. ALSAC's Board of Directors and leadership team includes individuals living with ALS, caregivers, and experienced professionals working together to push for urgent action on access to treatments, clinical trials, and research investment across Canada.
Led by Executive Director Leigh Naturkach, the organization is building a national movement to amplify patient voices and drive equitable, patient-centred change. Leigh brings more than 25 years of experience across health, social justice, and grassroots advocacy, with a career defined by advancing equity, community engagement, and access to care for underserved populations.
Read more about the ALS Action Canada's full board of directors and leadership here.
The Advisory Council
Don Wright
ALS Action Canada Chairman, Senior Public Sector Executive
Dr. Colleen O’Connell
Physiatrist, Prof. Dalhousie University Faculty of Medicine | Medical Director & Research Chief at Horizon’s Stan Cassidy Centre
Dr. Angela Genge
Neurologist & Director ALS Centre of Excellence for Research & Patient care at McGill University, Quebec
Dr. Lorne Zinman
Neurologist, Associate Scientist, Director Sunnybrook Health Sciences Centre, Ontario
Dr. Wendy Johnston
Neurologist, Professor at the University of Alberta
Dr. Lawrence Korngut
Neurologist & Director of the Calgary Neuromuscular Program, Alberta
Dr. Andrew Darke
pAL, ALS Action Canada Advocacy Committee Member
Rick Zwiep
pAL, ALS Action Canada Board Director
Cali Orsulak
cAL, ALS Action Canada Board Director
Dr. Merit Cudkowicz
Director of the Healey & AMG Centre for ALS, Chief of Neurology at Massachusetts General Hospital
Dr. Ammar Al-Chalabi
Prof. of Neurology & Complex Disease Genetics at Institute of Psychiatry, Psychology & Neuroscience at King's College London England
Dr. Erik Pioro
ALS Society of BC Chair & Professor of ALS Research, University of British Columbia
Impact & Stories
Explore the impact being created by the ALS Super Fund and it's grantee partners
Give
Selected gift amount
$50.00
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Get involved
From individuals and families to workplaces, corporations, and community groups, there are many ways to support the ALS movement. Get involved in the way that feels right for you.